References

References

Module 1

Click on the links below to learn more about specific topics covered in Module 1.

CF Foundation Resources: short articles on the CFF website
Nutritional basics for CF
Enteral tube feeding guidelines
One parent’s journey with considering a G-tube

Medical Articles: Published medical articles about G-tubes in CF care
Impact of improved nutritional status on health outcomes in CF
Caregiver experiences with G-tube decision-making
Attitudes toward G-tubes among caregivers and children with CF

Videos
Video series on “Owning Your G-tube” and Episode 1 on bolus feeding
Video describing continuous feeding
Video on nasogastric tube feeding

Module 2

Click on the links below to learn more about specific topics covered in Module 2.

 

Medical Articles:

 

Improvements in growth among people with CF after G-tube placement

BMI improvements after starting enteral feeds

BMI improvements after enteral tube feeding

 

Improvement in lung health among people with CF after G-tube placement

FEV1 improvements and decrease in hospitalizations after enteral tube feeding
Improvement in FEV1 after enteral tube feeding

 

Reduced Mealtime stress after G-tube placement among people with CF
G-tubes reduce mealtime stress
G-tubes reduce stress for families

 

Improved Energy after G-tube placement among people with CF

G-tubes improve energy for children with CF

Perceptions about improved energy levels after G-tube placement

 

Videos

Video series on “Owning Your G-tube” and Episode 5 on the benefits of G-tubes

Module 3

Click on the links below to learn more about specific topics covered in Module 3.

 

CFF Foundation Resources:
One child’s experience removing his G-tube
Common G-tube complications

 

Medical Articles:
Complications of enteral tube feeding in CF
Caregiver experiences with caring for a child with CF and a G-tube
Experiences of caregivers and children with CF and a G-tube

 

Helpful Websites

Click here to see sample travel letters created by The Oley Foundation

Review a list of books that are focused on children with tube feedings

 

Videos:

Video of how one children’s hospital places a G-tube
Video of how to manage a G-tube and troubleshooting advice
Video on how one mom made a feeding tube backpack
Video of how to clamp and unclamp, flush, administer medicines, and unclog a G-Tube
Video of how to do a tube change